Bay Area NF Support Group at Stanford
With the support of the Lucile Packard Children’s Hospital,
this group brings together parents, friends, and family
of children and teens who have been diagnosed with Neurofibromatosis.
The group is open to all families, whether your child is being treated at
Kaiser, Stanford, UCSF, or elsewhere in the bay area.
Our goal is to:
- Share experiences, information and ideas that have made a difference
- Be listeners and supporters of families who are coping with NF
- Learn from each other how to maximize the home and educational environment for families and children
- Hear guest speakers with perspectives and expertise on NF
The support group is not intended as a source of expert advice or information nor can it substitute for the medical supervision of your physician. We get together periodically to provide mutual support and encouragement and to give parents and family members an opportunity to speak openly in a safe, confidential, and supportive environment about our day-to-day issues in living with NF.